He coughs at every meal now, his voice comes out wet after he drinks, and last Tuesday you found food tucked in his cheek an hour after lunch. Mealtime trouble in dementia is not a manners problem, and this page will ask you to watch for less obvious things than coughing, since the most dangerous swallowing trouble is the kind that makes no sound at all.
Before you reach across the table, notice what is rising in you, whether it is the jolt of fear at each cough or the wearing frustration of another slow meal. That is yours, it is normal, and it is worth one breath before you speak.
Before you read mealtime trouble as the disease progressing, have his mouth checked, since a cracked tooth, ill-fitting dentures, thrush, or a mouth dried out by medication can make anyone chew strangely and swallow reluctantly, and every one of those has a fix.
Swallowing looks like one action but is really a sequence, dozens of muscles firing in order, and dementia can take the sequence apart the way it takes apart dressing or making coffee. That is what pocketing is: the food arrives, the chewing happens, and the step that says "now swallow" does not fire, so the bite waits in his cheek. He is not being stubborn or saving it for later. The instruction simply is not arriving, which is why reminding him to chew mid-bite so often fails, since his brain is already juggling steps it used to run without him.
Here is the part of this page to hold onto: the absence of coughing is not reassurance. Food and liquid can slip toward the lungs silently, with no cough at all, and the signs are quieter, a wet or gurgly voice after drinks, repeated throat clearing, low-grade fevers that come and go after meals, breathing that runs a little fast. Those are worth a call even when the coughing stops, because pneumonia that starts this way is among the most common causes of death in late-stage dementia, and catching the swallowing problem early is how families and clinicians get ahead of it.
Many families add thickener to drinks on their own, because it seems like the obvious way to stop liquid going down wrong. Hold off. The best current evidence, including a study of nearly nine thousand hospitalized dementia patients, found no survival benefit from thickened liquids, and the thickened group actually had more lung complications, while thickened drinks reliably make people drink less, taste worse to them, and raise the risk of dehydration. Thickening is a real tool with real costs, and the decision belongs to the speech-language pathologist after an evaluation, made with you, not before it and not from the pantry.
Print the one-page log if you want somewhere to keep this, and take it to the appointment.
When swallowing trouble is part of a late stage, the late-stage comfort quick reference covers comfort feeding, hospice, and what changes near the end.
This is what the tracking is for. Which foods set off the coughing, how long meals run, and what his voice sounds like after a drink is what turns a worried mealtime into something a doctor and a therapist can act on.
If he is coughing with force, or can speak or make any noise, do not hit his back and do not do thrusts. A forceful cough is the airway working, and striking him can drive the food deeper. Stay with him and let him cough.
If he goes silent, grabs his throat, squeaks, or his lips turn gray or blue: give five back blows between his shoulder blades with the heel of your hand, then five abdominal thrusts, pulling inward and upward above his navel, and repeat, five and five, until the food comes out. If someone else is home, they call 911 while you work. If you are alone, work first, then call.
If he slumps or stops responding, get him to the floor, call 911 on speaker, and start CPR. Take something from his mouth only if you can see it. Never sweep blind.
If a wheelchair or his size makes abdominal thrusts impossible, give chest thrusts instead: a fist against the center of his breastbone, covered with your other hand, pulled sharply inward, five at a time.
A slow, quiet meal that he swallowed safely is a good meal. The evaluation decides the textures and the thickener, and you keep the part that is yours, the upright chair and the unhurried table. Watching for the quiet signs is not hovering, it is the job.